The fight against Addison's disease is on...
4Philip dot Org™ is North Carolina’s only non-profit organization promoting research and a cure for Addison’s disease.
4 Philip dot Org™ is a non-profit organization whose current mission is to ensure that adrenal shock is recognized by emergency diagnostic protocol and that Solu-Cortef is made available to all emergency crews where paramedic staff are present and to promote research that will one day lead to a cure for Addison’s disease.
On this 5th anniversary of Philip’s death, we ask you to please consider helping us to meet our goal to provide solu-cortef on every EMS crew. This vitally important drug is necessary for anyone who is going into adrenal crisis. Currently emergency crews do not carry this much needed medication. This puts anyone who is suffering from adrenal disease at risk of dying in a crisis.
We also provide support, educational and lifestyle programs for individuals who suffer from Addison’s and related adrenal diseases such as Cushing’s Syndrome, Congenital Adrenal Hyperplasia, ( CAH ), Hyperaldosteronism and related pituitary and thyroid diseases. The programs will form partnerships with the local community to bring further awareness, support for sufferers and family and education of these diseases and the available resources in support of the Philip Hart Memorial Fund for research in Pediatric Endocrinology at Duke Children’s Hospital & Health Center.
The Philip Hart Memorial Fund for Research in Pediatric Endocrinology is a medical initiative to provide research into the causes of Addison’s Disease. Benefiting children of all ages by providing early diagnosis, treatment and eventually a cure for this deadly adrenal disease.
Did you know?
- ALL cancers are forms of autoimmune disease?
- Addison’s Disease and adrenal insufficiency are also forms of autoimmune disease?
- Adrenal shock is only now recognized by emergency personnel in diagnostic protocol?
- Ambulances and other emergency crews who are licensed to give medications do NOT carry Solu-Cortef?
The Need is NOW!
4Philip dot Org™ is the only non-profit organization that has made significant changes in emergency procedures in North Carolina. Our partnership with Wake Tech Community College’s EMS program has brought about positive change. Because of our newly founded partnership, all local EMS crews now have the knowledge and awareness of adrenal shock. Adrenal shock is now the 3rd diagnosis to be evaluated by emergency personnel when working with a patient who is in crisis.
While this is a significant change, it’s not enough. Emergency crews do not carry Solu Cortef on board and this is not acceptable. We will continue our efforts to bring this to the attention of everyone with the hopes that Pfizer will learn of this need and partner with us to change this.
There is also the belief that adrenal insufficiency is rare and this is not the case.
At Duke University alone, there are more than 800 cases of children suffering from adrenal diseases and the number grows each year.
Multiply that by the number of instances of adrenal diseases throughout the U.S. and the world, and the figures are staggering.
NBC News posted an article in which 4 Philip’s CEO, Eric Hart and Duke University’s Children’s Hospital’s Dr. Micheal Freemark are quoted. Read more about that here.
Cushing’s Syndrome, Congenital Adrenal Hyperplasia ( CAH ) and Hyperaldosteronism are other forms of adrenal diseases which can affect a great number of people young and old.
Extrapolation of known cases in the U.S. would give a number between 8,000 and 10,000 cases of Addison’s alone, but this is probably an underestimation largely because of misdiagnosis.
Juvenile diabetes, also known as type 1 diabetes, is but one kind of disease that affects children and often co-exists with adrenal dysfunction which complicates treatment. Each year, more than 15,000 children are diagnosed with type 1 diabetes in the U.S. The rate of type 1 diabetes incidence among children under the age of 14 is estimated to increase by 3% annually worldwide. This does not take into count the number of cases of children who are also diagnosed with Celiac, thyroid disease, Cushing’s Syndrome, Congenital Adrenal Hyperplasia ( CAH ) or Hyperaldosteronism. These diseases are other known types of diseases that can affect children and often coexist with adrenal insufficiency.
Click on the GoFundMe link on the left side of the page or on the “Donate” link at the top to find out how you can help and get a cool medallion from 4Philip™ to show your support.
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